Showing posts with label PSC. Show all posts
Showing posts with label PSC. Show all posts

4.02.2007

Organ Donation Month


IT'S NATIONAL DONATE LIFE MONTH!!!!


I meant to post this yesterday but life got in the way. I had plenty of time yesterday to sit down and write a little bit, I guess I was just lazy and let it slip by me. So on the 2nd day of April I will let everyone know that this is an important month for me and all the other transplant recipients of the world. April is National Donate Life Month!! So with that I want everyone to be aware of the fact that there is an extreme shortage of organs in the world. At the bottom of this post I will post the current numbers on how many people are currently waiting for an organ transplant.

If you want to be an organ donor, (hopefully, if you are reading my story, you do) be sure to sign a donor card and LET YOUR FAMILY KNOW OF YOUR WISH TO BE AN ORGAN DONOR!! Upon your death, no matter if you signed a card or not, the choice of organ donation goes to your family. Even if it is in your will to donate, the procurement agency (Lifelink of Georgia, Florida, and Puerto Rico, anyways) will not take your organs. They do this out of respect for your family who are grieving at the moment. They do not want to cause your family any more heartache than they are already experiencing. So let your family know that you want to be an organ donor today!! Remind them often too! Transplantation works! I am living proof as well as some others who have links on the left side of my page.

Last year, I got out of Emory Express on April 5 (my dad's birthday) after 10 days in the hospital. I had not been outside since the surgery and was happy to be out. The first thing I noticed was a banner with a green ribbon declaring April Organ Donation Month on the bridge that joins the hospital and clinic. I remember thinking that I never knew about Organ Donation month before, and never really cared, but that banner meant the world to me at the time. For the next month, I passed that banner going to the clinic for bloodwork every morning. I never got tired of seeing the banner on the bridge knowing that thousands of people saw it everyday as they drove back and forth to work, school, or wherever else they may go. I think now, how my family, and even me, bought into the myths that surround organ donation and was not sold on the idea that it worked. Then it all hit home, I was affected with a condition that would require my family to count on someone who did not know me to save my life. I thank God everyday for that person and the family who made the decision. I will never be able to put into words how much they mean to me. If I ever do get to meet them, that will be one of the greatest days of my life. I do not know if they had been personally affected by organ donation and transplatation, but their decision saved my life. Become an organ donor and save someone else's life if something happens to yours. Organ donation is supported by every religion as it is the greatest gift, unselfish love to another!

"Don't take your organs to heaven, cause the Lord knows we need them here!!"

I drive with one of those same green ribbons on the back of my truck today and I love when people ask me what it stands for (I chuckle inside every time they ask because it says "Support Organ Donation" on it), and why I have it. It gives me the opportunity to talk to them about organ donation and get a feel for what they think about the process. I enjoy talking to people about organ donation and telling my story. I am not one to talk openly about myself, though most people who don't know me and read this probably don't believe. I tend to shy away from all conversation with people I don't know unless the topic of organ donation comes up, then I am an open book. So ask me about my transplant and about organ donation. I will not try to change your mind about organ donation. I will give you the facts and let you be a big boy or girl, and make the decision for yourself!!



Here are the current numbers from OPTN:

Waiting list candidates as of today 4/2/07 at 6:37pm
All 95,791
Kidney 70,866
Pancreas 1,730
Kidney/Pancreas 2,363
Liver 16,913
Intestine 230
Heart 2,830
Lung 2,810
Heart/Lung 121
All candidates will be less than the sum due to candidates waiting for multiple organs

3.27.2007

Find a different way to stand

That Oprah lady has some good things to say every now and then.

This quote by her sums up what I want to tell people when they ask me how I have made it through these trials at such a young age.


"Challenges are gifts that force us to search for a new center of gravity. Don't fight them. Just find a different way to stand."
--Oprah Winfrey


Find a different way to stand! That's deep enough..nothing else to add.

3.26.2007

One Year - So Much To Be Thankful For

Today marks one year since this journey with my new liver began. I have been thinking a lot about how things were before. I do this to keep perspective on how far I have come in the past year. There are mixed feelings about almost everything as I look back. There are things that I have done since surgery that I wish I hadn't. There are many more things that I wish I would have had the courage to do.

The past year has both flown and creeped by all at once. Looking back, I can't believe that a year has past, but as I was going through some of the trials it seemed so slow. I have had relatively few setbacks, the main one being the sinister CMV.

Today was a great day, though I was tired. Craig and I spent the weekend in Bristol at the race and got home around 3:30 AM. Three hours later, I was out of bed and getting ready for work. The day was non-stop with surprise after surprise. The people that I work with went completely out of their way to make today all about me and the transplant. Through some sneaky planning, my class made pancakes for me(blueberry with peanut butter, my favorite), my co-workers made a huge spread for lunch, and the faculty showed up for a party at the end of the day. They also had a lady from Lifelink (the organ procurement agency for Georgia, Florida, and Puerto Rico) come discuss organ donation with the faculty and give out some Donate Life goodies. The school wore green today for organ donation awareness and I knew nothing of the entire thing. I, of course, was wearing my green "Recycle" t-shirt (photo to come). There were some sneaking suspicions, but I never imagined the extent they would go to make me feel special. I am not the type who enjoys being the center of attention. I actually tend to shy away from the spotlight, but today was nice. It is a great feeling to know that you have people who are there for you. That people are willing to take time out of their busy schedules as moms and teachers to plan something that is special to me. Organ donation has become one of my passions and I am trying my hardest to get more and more into furthering the cause in any way that I can. The people that I work with realize this and are helping me to meet this goal. These types of things do not go unnoticed. I will honestly remember this day for the rest of my life. I cannot remember a day where so many people came together to show me that they love me. It still amazes me and more than once today it choked me up, and is again as I type this.

It is so easy to lose sight of all that you have to be thankful for. There is the obvious, the transplant, that is the reason that I am here and able to type this today. But there are many other things that I have to be thankful for. I am thankful for the donor family, who in extremely hard times, were unselfish enough to donate their loved ones organs to me and possibly others. I intend on writing a letter to them when I find words that can BEGIN to wrap around the love that I have for those people. There are my friends and coworkers who show their love everyday, in ways they do not even know. They show their love even in times where I am extremely close to unlovable. My family, who has stood beside me through this entire process. There have been many ups and downs that they only know about, and even more that Craig only knows about. He has been the one that I lean on, he has been the one that I can tell when I hit rock bottom. He is the one who constantly pulls me back up when I am ready to give up. That has been more than once. Sarah, though she came after the surgery, has been another person that I can tell anything to in confidence and know that I will not be judged. She has been my motivator and does not let me use the transplant as an excuse to give up on anything. For that I am thankful because there are times that I get lazy and would use it as a crutch. She pushes me to better myself constantly. There are so many people that I could name that have been an inspiration to me. There are the doctors and the nurses on 9E and in the transplant clinic who never told me that my goals were unreachable. They told me they were lofty, but that I should shoot for them. If any of them happen to read this, I want them to know that each one was met. I returned to work in August, I went hiking, I am back on my mountain bike, I am working out, and I am enjoying life like I never thought that I would again.

There are many things that I haven't done and at times I feel like I am still not living. I want to step out of my comfort zone and make a difference in the world. I don't need to make a big difference, just a little ripple will be fine with me. I want to make my donor and their family proud. I want them to know that their decision was not made in vain. Their loved one is living on inside me and I tell our story everywhere I go. I am thankful for so much and this post barely scrapes the surface of all that I am feeling at the moment. I thank God for giving me the faith to trust in him, the strength to carry on through hard times, and the time to make a difference in the world for him. I want Him to be proud of me when it is my time to go more than anything else. Happy 1st transplantiversary to me! Happy 1st transplantiversary to my donor! Happy 1st transplantiversary to all those who have stood by me and loved me through it all.

3.20.2007

2 for 1 deal

As I was checking my email this morning, I noticed the top story on Yahoo! was about liver transplantation. It was an awesome story which will no doubt raise ethical concerns in the near future. As a transplant recipient and knowing about the organ shortage it was nice to see that organ donation and transplantation had front row seats on one of the most popular websites on the internet!

The story told of a 21 year old college student who got the call that she was to receive a new liver. When she got to the hospital, she learned there was a baby girl who was in serious need of a liver as well. She asked the doctor if he could split the liver and give part to the baby. The liver is able to regenerate itself in about a month with enough blood flow. Most pediatric livers use only one lobe of the liver and often times the other is given to someone else or thrown away. The doctor agreed to split the liver and now two lives were saved with one organ.

This is a fascinating story about a brave girl who was willing to risk her chances to save someone else. She is my newest hero! That is one heck of an example of unselfish love for your fellow man. I applaud the doctor for taking the chance as well as the young lady who was able to be so unselfish at a time when she had every right to be selfish!

3.08.2007

Q&A update

Yesterday was the Q&A at Children's Healthcare of Atlanta. It went surprisingly well even though I could barely talk! It never fails that I lose my voice on the days that I am required to talk in front of people. Oh well, it was a very informal support group type meeting so no big deal. I think that Jenn and I did a pretty good job and hopefully calmed some of the parent's fears. I feel for the parents of these children who are never going to know a life without medication and doctor's appointments. I hope that seeing Jenn and me as productive citizens post-transplant will give them hope for their children to live fulfilling lives.

We got some good feedback from some of the people running the show and have invited us back for something similar in the future. I can't wait to go again. I honestly think I could do that everyday. It has been exciting meeting so many people here lately who are passionate about organ donation and transplantation. I admire each one of them, but some have never even been directly affected, those I really admire. They have a love and a passion for others that hopefully one day I will realize. They amaze me.

18 days until my 1st transplantiversary!!

3.01.2007

Walking and Riding for Organ Donation

Next Wednesday is the big day! I am going to talk to the group of parents at Children's Healthcare of Atlanta and I am getting excited about going. I am going into this blind, not knowing what to expect but I am looking forward to talking to people about my experience with transplantation. I have no idea what I am going to say. I hope that I will be able to say something worthwhile to the parents. Brent left a comment on my earlier post telling me to be honest about my feelings. He said that the parents are wanting to know what is going on inside of their children emotionally so they can help. I think that was great advice and I will be taking that with me to the session.

I have also been in contact with others who are active in the organ donation world. It seems I have been meeting lots of wonderful people lately. First there was Kim, from Pensacola, which I mentioned in an earlier post.

In the past week, I have been fortunate enough to speak with two other people through email. The first was a lady named Amanda Prather from Jasper, Ga. Her father received a kidney from her sister through the living donor process two years ago. She is organizing a walk for organ donation in Jasper on April 14, 2007. The name of the walk is Donate Life Walk: Raising Awareness One Friend At A Time. Here are pictures from last years 1st annual walk. If any of you are willing to walk, I am going to try and get a group from Dahlonega to head over to Jasper that morning to show our support for organ donation as well. If you are interested let me know and I will get you a registration form. There is a registration fee that includes a T-shirt. All of the proceeds will go to support the Georgia Transplant Foundation.

The other person that I have been talking to is from California. (This is where technology amazes me. I never would have known about Team Donate Life, let alone talk to someone involved if it weren't for the internet.) Kent Mulkey and I have been exchanging emails lately about biking and organ donation. Mr. Mulkey is riding in the Race Across America (RAAM) for Team Donate Life. He will be riding over 1500 miles in 8 days on a bicycle. He became involved in organ donation after his best friend and best friend's dad went through the living donor process. He is now the main man in charge of Team Donate Life as well as his own life. Check out Kent's blog, An Unfinished Life. It is an inspiring one!

I think that it is cool how many doors have been opening up lately for me to get to know so many people in the organ donation community. I enjoy meeting everyone and hope to meet many more in the future!

2.23.2007

March 7 - Parent Q&A

Well, I have been kind of dry lately. Not so much across the board, but about organ donation and anything to write on here. As always, I have plenty to say but I am trying to keep this blog semi-focused. I am still wondering about the direction it will take. I am sure that it will still focus on organ donation, struggles with transplantation, others going through the process, and me as well. I am just wondering if I need to expand it a little to include some of my bigger thoughts about other things that I feel should be shared. I don't know. Guess I will ponder it more. Any feedback would be appreciated as well.

As for me, I am doing well. I got a couple of weeks off of going to the doctor which is great. My truck is thanking me that is for sure. I changed my oil 3 weeks ago and have driven 1900 miles since then. I didn't realize I was on the road that much until I started logging it.

I am looking forward to March 7 with much anticipation and nervousness. I have never been really good at talking in front of people, though in the past 4 or 5 years I have forced myself to do it a great deal. For those that know me can attest to the fact that I am painfully shy when the group gets above 3 or 4. I basically shut down in the conversation that is taking place.

On March 7, I am going to Children's Healthcare of Atlanta to speak to a group of parents. I will be on a panel of 7 young adult organ transplant recipients answering questions for parents of children who are waiting for a transplant. We will be telling them how transplantation has affected our lives. I feel for these parents who are no doubt worried about whether their child will be able to live a normal life. I am not a parent and don't really understand that side of the card, but I do remember how nervous I was about my own life changing. I am happy to say that it has been the catalyst for the improvement in my quality of life. I have taken up some things that I had given up when I was sick and also made some changes in my life that are much healthier. I hope that through this experience, the parents will be more at ease with how their children will live post-transplant. I am exciting about the opportunity to speak, but I am nervous about opening up in a public setting. I say a lot on this blog that I would never say in person; it is easy to hide behind the computer screen!

Guess I wasn't as dry as I thought.

1.15.2007

As promised

Here are the pics that I promised. The first is from about 2 weeks after surgery and the second is from last night.


You can tell how much swelling there was when you compare it to the second picture. I had forgotten I was that swollen.

The little bump on the left side (my right) of the pic is my liver still trying to get back into position! You can compare the right side bulge and see that it has gone down a lot since March. I am surprised the scar is fading like it is. I am pretty proud of it now....and to think that I was so scared! What a pansy!!

1.05.2007

Long Time

Haven't posted in a while. Things have now calmed down a little after Christmas and I plan on posting more here soon.

Short Update: I have not been in the hospital in a little over a month (knock on wood). The doctors changed some of my medication at the end of November which caused some of my liver enzymes to become elevated. They have put be back on my original dosages and the levels are coming back down. It is funny to see how finicky the transplant process is when it comes to medication and rejection. Long story short, I am doing well. I had a great Christmas and New Year's, saw some friends, had a break from work, and enjoyed every minute. I am looking forward to the new year and the changes 2007 may hold for me. It feels good to be healthy!

Hopefully soon I will get a picture of the scar up.......I am planning on posting the picture of the incision (staples and all) and a recent picture of how it all is healing. Keep looking back!

11.24.2006

Hard Work

This is ten percent luck, twenty percent skill
Fifteen percent concentrated power of will
Five percent pleasure, fifty percent pain
And a hundred percent reason to remember the name!
-Fort Minor "Remember the Name"

Was listening to this song the other day and got to thinking about life. More specifically, having things in life that we take pride in. I'm not talking material possessions or trivial things, but relationships that we have had to work at, careers that we had to work to achieve, and other things that we can honestly look back and say, "I did that!" To get there is rarely an easy road and we have all put in our "fifty percent pain" while only getting the "five percent pleasure." Looking back though, we have pleasure in knowing that we did all we could to make things work and we can be proud and have 100% pleasure in knowing that we have worked hard for what we have and that no one can take that from us.

With that, I just want to say thank you to everyone who has helped me get the things that I am proud to look back at with a feeling of accomplishment. Some of you probably don't know the part you played. One day I hope to be able to tell everyone that part and thank them personally!

11.23.2006

Happy Thanksgiving

Hope everyone has had a great Thanksgiving. I know this is getting out late on Thanksgiving night, but I have been busy all day doing family "stuff." It has been a really good day. Had some time to reflect today on things to be thankful for and, of course, I have many! It didn't hit me until later tonight that just being around family for me this year is a blessing. Just to not be in the hospital or sick is a blessing. To have a family to spend time with is a blessing. I could go on and on. I know, lately, I have been scarce with my friends but I have been spending more time with my family. I want to thank everyone who reads this and who has helped me through hard times with the transplant. I know that the prayers that were prayed and the kind words that were said to me will not go unpaid. I just want everyone to know that, on Earth, right now, they haven't gone unnoticed! Happy Thanksgiving!

11.13.2006

Wellness Conference

Sorry for the long delay in updating. I have been incredibly busy with teaching and trying to stay caught up. It is easy to get behind when you miss at least one day a week, not to mention the hospital stays that have set me back 3 or 4 days at a time. I am getting caught up and actually feel like I can breathe now. Hopefully I will be updating more regularly now. Now for the update....

First off, I am whole again! I had a biliary drain in my side until last Wednesday and it was removed. This means that there are no more tubes or medical appendages coming out of my body. It feels good to not have to worry about pulling it out before it needs to come out. I was happy to discover that the removal of the biliary drain did not hurt. I was worried going in because the removal of my JP drain was nothing short of excruciating. The doctor just told me to take a deep breath and before I could finish inhaling, he was finished. Otherwise, I am doing well.

Second, I spent all day Saturday at a Wellness Conference put on by the Georgia Transplant Foundation. It was awesome to meet other people who have had a transplant and see other people who I haven't seen since we left Emory. I also met my inspiration and benchmark for getting better, Chris Klug. He is an Olympic bronze medalist snowboarder who won that medal just a year and a half after transplant. He is a superstar in the transplant community and an inspiration to others. You never know how it is going to be when you meet people with "status." I went to a seminar that was a Q&A with Klug. In the seminar there was also a transplant pharmacist from Tampa General Hospital who was a recipient of 2 kidneys. Klug later came up and we had a short conversation over lunch. It is always nice when you meet people you look up to and they live up to those expectations.

Well that is the update for now, hope you enjoyed!

10.25.2006

PICC Line is gone!

Just returned from one more long trip to Emory University's Transplant Clinic. Good checkup. Been a while since I had one go that well. Lately going to the clinic has been a nervous experience because I never know if they are going to admit me or not. My bloodwork has been a little off the past month or so but today everything was completely back to normal. That is great news! CMV (cytomegalovirus) is gone finally....hopefully never to return. I had my PICC line removed which is a huge relief. The PICC line itself isn't annoying but just knowing it is there is a constant reminder of wasting 2 hours of my day every day hooked up to an IV bag. Oh well, it is now gone. Also found out one day next week I will be having another tube study completed on my T-tube (biliary drain) and hopefully getting it removed. That will mean that I am tube free and will have no legitimate restrictions on my activities. Not that I have any now, but at least then I will be cleared by the docs to do whatever I want without having to sneak around them. There is the update for this week! Hope you enjoy!

10.18.2006

Whew!

Not a ton to write about lately. Been a rough past six weeks with 3 separate visits to the hospital. No major bumps in the road, just trying to "iron out some wrinkles" I suppose. I am currently still trying to get over my second bout with CMV (got my first negative today and hopefully will be off the IV meds next Tuesday). Seems that everything has hit at one time and that jinx i mentioned before bit me in the tail. Hopefully though, things are looking up and the hospital visits are coming to an end. Keep your fingers crossed and hopefully I'll be able to update a little more soon and with some more upbeat stories. Hope all is well with everyone.

10.02.2006

Psychic

PICC Line

I knew it writing the last post that feeling that good wasn't going to last. That is why I threw out the "jinxing myself" disclaimer, hoping I was wrong. I wasn't by any means. Not only did I jinx myself but I managed to do it within 24 hours. That has to be some great accomplishment....Chris Angel couldn't even do that!

I spent last Wednesday night, Thursday, Friday, and Saturday morning at the good ol' Emory express once again. Felt great on Tuesday and all morning on Wednesday. Then like a ton of bricks about 2pm I became exhausted. When I say exhausted I mean couldn't hold my head up. I drove home already chilling from a fever to take some Tylenol praying that what I thought was happening was not. I woke up from about a 2 hour nap to find that my fever had gone down to 100.7 from a 102 at it's peak. I thought that I might be okay until 30 minutes later the fever was back up to 101.7 so I made the fun and exciting call to my surgeon who said for me to come on down and visit the ER. After packing 4 days worth of clothes and supplies, we walked into the ER looking like we were going on vacation. (I'm sure the people in the ER think we are crazy when we walk in with luggage. We know that when we visit, it's going to be an extended one.)

Long story short, missed 2 days of work with good ol CMV rearing it's ugly head again. Got a brand new picc line in my right arm (figured I would switch it up) for some home IV treatments. Read some magazines and books, watched some TV, got stuck with a few million needles, and got lots of sleep. Came home on Saturday morning and feeling fine.......at the moment anyways!

Still feeling good overall...just scared to say too much. You see what it got me last time. I still love my new liver though! (just in case it's listening)

9.26.2006

6 Months

Today marked 6 months since I began a new relationship. Like all new relationships, it has been rocky at times and I still have moments when I wonder what I have gotten myself into. In these six months not once have I wished things to be any different. This new relationship has changed my life. We are both in this relationship until "death do us part" unless I have to find a new "friend", we both hope that doesn't have to happen though. Needless to say I am happy with where I stand and look forward to many more years together. I love my new liver!!

I am sure that it isn't a very important day to many and after this September 26th it probably will not be an important date to me. This particular 9/26 is important to me though. I have waited for this day because it marks a milestone for me. I had some goals set before and right after surgery for this day and I am happy to say that I have been able to meet all of those goals. Some met more than others but all were met. I did get to go on a small vacation (not the best), I am working out again, and I am back to work full time. It feels good to know that those goals were met at some time or another within six months of my transplant. I am still not working out at full tilt but I am on my way. I can honestly say, smiling as I type, that I feel better than anytime I can remember in my life. (I know I probably just jinxed myself and will be at Emory now.) I have so much more energy and a much more positive attitude. I attribute most of this of course to my new "friend" but also to cleaning up my diet and working out. For the first time in my life, I understand how people can love working out. I now have the energy to finish a workout and not be ready to crash. I also am a much happier person both inside and out! I can wake up with a smile in the morning and it be genuine because I feel good. I no longer have to paint on my smile in the morning while I brush my teeth and get ready for work. It just shows up every morning (well....most mornings). Six months and counting! My next milestone will be March 26, 2007 (one year). I will be setting some more goals over the next couple of days. Might just be a good topic for a future post. I am going to shoot high with these goals and do my best to attain them. May need some help from the cheering section for the goals to be met! Hope all is well with everyone who reads this and God bless you all! Happy 6 month anniversary to me!

9.19.2006

Need some inspiration?

I stole this video off of a friend's page. It is the video of a father and sons journey through the CAN-triathalon. Thanks Julie.

9.18.2006

Attitude

Made it through the weekend without another hospital stay which is saying a lot lately. I'm feeling really good today. I'm sore from starting a new workout on Saturday but I like the feeling. Well that's my update for today! Now on to more important things.

I read a motivational article that I read on Monday mornings that was about storms in life. In this article a man was sitting on his porch when an unexpected storm came up on a beautiful day. The storm wasn't forecast and when he checked the Doppler radar he saw that the storm was no where else in the tri-state area except over where he was. The storm hovered there for just a little while before it dissipated. Once it stopped, the air was clearer and the sun seemed to shine even brighter.

This made me think this morning of the things we all go through from time to time. Sometimes it seems that we are in a cartoon or like the guy in this article where that cloud seems to hang around and just follow us wherever we go. I believe that "tribulation worketh patience" and sometimes God puts us through trials in life so that we can draw closer to him. I believe there are times that through trials we are forced to get ourselves out of the way and lean on Him because we CAN'T do anything alone. I have been through my share of storms over the past years and I am sure that there are many storms ahead in my life.

With that said, I also believe we are directly responsible often times for that cloud lingering above our head. We have all heard that when we wake up in the morning we decide whether we are going to have a good day or a bad day. Lately, I have been more and more in agreement with that statement. Many times things happen in the morning or first thing in the day that put a sour note on that moment. At that moment we have the opportunity to let that negative thing go or hold on to it. I have been trying lately to let the negative things go and focus on the positive things that happen from day to day. There is always a reason to smile though sometimes it may be hard to find. When that cloud catches up with you, just let it go on by and don't make it hang around because of poor attitude or choices.

Storms come in life and sometimes they are hard to weather. We have all had times where we just wanted to give up. I have been there, not just once or twice, thinking why am I even fighting. There have been many times that there seemed to be no light at the end of my tunnel or no sunshine on my horizon. Eventually though all things passed and on the other side was a clearer perspective, a breath of fresh air, a reason to smile, and most importantly a victory. After going through a storm, I can often look back and draw strength from that experience and know that it helped better me a person and make me who I am today.

Before my surgery, I was worried about a lot of things: How was life going to be post-surgery? How would people look at me differently? Was my scar going to be large? Would I ever be able to do the things I love? I was scared to death. I wasn't scared of the surgery but was it worth going through if I had to change my life and not be able to do the things that I love doing. Looking back, all of that was foolish thinking. My life has definitely changed since the surgery but, honestly, I think it has made me a better person. I now wear my scar proudly! I am self-conscious about it but not because of what people will think of me, but because I do not like the attention that it garners. Life is much the same now, I get to hang out with my friends when I get the chance, the people who care about me treat me just the same, and I am slowly getting back to doing the things I enjoy.

All of this comes along with a new perspective on life, enjoying every day that I get, and enjoying the smell of life after a good storm. Everything is fresh and clean. I know there is another storm ahead and many more after that one but I look forward to the sunshine and clean feeling that comes from getting out of each one.

"Every day may not be good, but there is something good in every day." - Author Unknown

9.13.2006

Home

An update.....I just got home from another extended stay at the Emory Express. Woke up Sunday morning not feeling well but figured it was a bug I had contracted from my students at school. (Still not convinced that it wasn't!) Went to Kevin's house for a cookout and was feeling pretty good, but on the way home I started feeling tired and sluggish. This is a common occurrence now since the surgery. My stamina still isn't back to where it was. When I got home I laid down for a bit then started to feel like I had a fever so I checked it and it was 101.4 which means it is time to head to Emory. I checked it again about 30 minutes later and it was 101.7. A rising temp above 101 means I need to get to Emory in a hurry. On the ride down my fever broke and was going down, so when I got to Emory I only had a temp of 100.2. Long story short.....transplant patient....low immune system......fever=infection.....3 day stay. I'm starting to get used to the routine of going to the ER, getting admitted, pumped full of antibiotics, and being sent on my way. Only a minor interruption in my life...in a few months ill forget it ever happened!